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路有多長、這是我最近常有的疑問、在上禮拜一臭妹過完一

歲生日後、星期四住進台中榮總、星期五的心導管手術卻讓

她回到比出生更差的狀況-----腦傷、至今還未有意識、影片

中看到眼睛張開並不是清醒、而是腦傷引起的眼球顫動、並

不是臭妹在東看看、西看看、手術前她已進步至可以自行喝

完一整罐奶、在我們懷裡會抬頭看看我們笑、撒撒嬌、搔她

癢會有反應、會翻身、踢被、有時還會偷看電視、但爬行跟

基本的坐都還不行、現在卻回到比出生時更差的狀況、接下

來路有多長、是我們需要去面對的課題。

 

 

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edwardssyndrome

她的名字叫愛德華

edwardssyndrome 發表在 痞客邦 留言(8) 人氣()


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  • Helen
  • My heart hurt!!!
    we are praying for you from San Francisco
  • i really appreciate for your love!~~ i like your masterpieces!~~they are so fantastic!


    edwardssyndrome 於 2009/08/28 00:33 回覆

  • Helen, SF
  • I read this today:
    ..............................
    <Romans 8:29~> (Message Bible)
    God knew what he was doing from the very beginning. He decided from the outset to shape the lives of those who love him along the same lines as the life of his Son....
    God made that decision of what his children should be like, he followed it up by calling people by name. After he called them by name, he set them on a solid basis with himself. And then, after getting them established, he stayed with them to the end, gloriously completing what he had begun...
    --------------
    I learn that:
    *at the worse God still know what to do
    *our life will shaped like His son
    *He will stick with you through the end
    ...............................
    hope it could encourage you, hanging there...
  • field
  • 無論路有多長,我們一起走下去吧!
  • 小百合
  • 路長路短都會有神與弟兄姊妹與你們同行!
  • Jill
  • HE is carrying you, and we will walk with you side by side. Loves
  • johan
  • dear 慈佑,婉柔
    我所能做的只有為你們全家禱告,盼望每一個人都能得到神的撫慰!
  • 舒綺
  • 爸爸媽媽~
    我是榮總復健科第一位帶怡宸的姐姐,還記得我嗎??
    有聽老師說起妹妹的事,當下有嚇到,也覺得很心疼...捨不得這麼小的身軀受了這麼多的折騰...
    爸爸媽媽,你們要加油喔
  • 謝謝~~妹在PICU#16,有空可以去看看她,3Q

    edwardssyndrome 於 2009/09/03 16:59 回覆

  • 小若
  • 我是從minnie媽媽那兒連過來的

    怡宸把拔馬麻加油~
    願上帝使這條路成為真真實實的恩典之路!
    多照顧自己!!
  • 謝謝鼓勵!

    edwardssyndrome 於 2009/12/28 21:14 回覆